Duong Thi An and Her Children

A family tries to cope with blindness 

 

Profile by Jacob Cohn, July 2017

mrs an and childrenDuong Thi An lives with two of her children in a village in Le Thuy district, located near the Pacific coast around an hour’s drive south of Dong Hoi. A rural area, the district is perhaps best known for producing Vo Nguyen Giap, a celebrated North Vietnamese general during the country’s wars with France and the United States. Mrs. An’s modest wooden house lies on a dirt road, with a pond visible on the other side. The occasional motorcycle or bicycle passes by as we speak with Mrs. An, but overall the neighborhood is quiet; once again I’m joined by Mr. Thuan the outreach worker, my translator Ngoc and our AP associate Dat for this visit.

As we sit down with Mrs. An in her living room, we’re joined by her son Huong and her daughter Hoa, adults who still require their mother’s care due to the effects of Agent Orange. Mrs. An herself is in her sixties and seems melancholy and withdrawn—she speaks in a quiet voice I might struggle to follow even if I understood Vietnamese. It takes her a few minutes to respond to my first question about her first experience with Agent Orange, and as I wait for the translation I look around the living room; it’s dark and fairly spartan, with a prominently displayed certificate honoring the military service of Mrs. An’s late husband, Le Quoc Hung.

Mrs. An tells me that her first exposure to Agent Orange occurred when her son Hoi, the first of three children, was born in 1976. Hoi’s father, Mrs. An’s husband Le Quoc Hung, had served in the North Vietnamese military during the American War and was exposed to Agent Orange in the late 1960s, while stationed in the forest around what was then the border between North and South Vietnam. As a result, Hoi was born with limited mental capacity, but he grew up to be functional enough to marry and start his own family; he now lives nearby, but a couple of his children scamper around the house during our talk. At one point, one of Hoi’s daughters brings another kid to gawk at the strange visitors—they peek at us over the fence as we continue our conversation.

Mrs. An and Mr. Hung would have two more children before Mr. Hung’s death in 1981. The first, Huong (now 38), was born normal, but at age 9 his eyesight suddenly began to weaken, forcing doctors to remove his right eye. The youngest child and only daughter, Hoa (now 35) was born with Down syndrome and has never been able to go to school or grow into a functional adult. Mrs. An says that Hoa can only do simple household chores, but Huong was able to get a job as a masseur at a nearby massage parlor. However, his eyesight has been getting progressively worse since 2012 when he developed a detached retina in his remaining eye, forcing him to stop working.

2 kidsHuong tells me that he can now only see “big things”; his left eye functions at around 10% of normal sight. He’s had four operations in the last five years to prevent from going blind, which has been a major expense for the family, but the retina becomes more easily broken after each reattachment, and Huong’s has since become detached again. He and his mother are hopeful that another operation could stabilize his vision, but the cost is more than they can afford. Mrs. An has a small farm where she raises rice, sweet potatoes, and other vegetables, and she also raises pigs, chickens, ducks and geese, but she tells me that the family has still struggled to make ends meet. There have been periods where Mrs. An’s family hasn’t had enough to eat, which is particularly damaging for Hoa; without nourishment, she can suffer serious fevers.

The solution we’ve developed with Mrs. An’s help is to buy her family a buffalo, which Hoi and Huong will care for together. Mrs. An hopes to breed the buffalo and produce a calf that she can raise and sell—she can also use the buffalo for farm work, to generate fertilizer, and to rent out to other farmers in her area. Mrs. An seems dispirited for much of our visit, but she is noticeably optimistic about the possibility of improving her family’s status with a buffalo. She’s owned a buffalo in the past, she says, but had to sell it to pay for treatment for Huong; breeding her buffalo will allow her to build a more sustainable income, which she will use to buy much-needed food and medicine for Huong and Hoa.

Mrs. An’s longer-term goal, she says, is a surgical procedure for Huong that could stop the decline of his vision. But this would involve a trip to the eye hospital in Hanoi (over 300 miles away) and a long-term stay so that doctors can monitor him; it would end up costing 50 to 70 million Vietnamese dong (around $2200 to $3000), which even with the buffalo is too much for them to afford. Mrs. An says that selling the calf, and possibly breeding the buffalo again, would help her eventually save enough money to afford the surgery for Huong. I ask Huong if there’s a deadline for the surgery, and he responds that he isn’t sure—but sooner would surely be better, while he still has eyesight left to preserve.

Dat will eventually talk with me about some of the nuances of this part of the conversation that doesn’t get translated. As he will report, Mrs. An says that she’s offered to give Huong one of her own eyes in order to repair his sight, only to be told by doctors that this wasn’t possible. She then quotes a proverb that Dat has difficulty translating, but summarizes by saying that when you have a goal and there’s a 99% chance of failure, that still leaves a 1% chance of success. In other words, as long as there’s any chance at all of improving her children’s lives, she’ll sacrifice anything for them.

 

#6 5When Huong’s eyes began to fail at age 9, Mrs. An recalls, she had to carry her son into the hospital and up a long flight of stairs for his operation. Thinking about this now, Mrs. An despairs. She wondered then, and wonders now, why none of her children were spared from the effects of the poison.

I ask about Hoa and whether there’s anything that can be done for her—Mrs. An tells me that there is no cure for her condition, but that medicine can at least make her life more bearable, and a buffalo would bring in the income necessary to buy the medicine Hoa needs. At this point, Huong adds that his ultimate dream, assuming he can retain some of his sight, is to open his own massage parlor and use his training to support himself and his family. This is well out of reach for them even with the buffalo, though, and medicine for Hoa and surgery for Huong is a much more immediate priority. Ngoc adds that this may eventually be something AEPD could help with, however.

At this point, we all go outside to look at the animals Mrs. An has now. Next to the house is a wooden barn, which will be the home of the buffalo once it’s purchased, and the backyard includes a pond where dozens of ducks and geese live. It’s feeding time, and Mrs. An gently calls the birds to her. As she scatters food for them to eat, she tells me that her larger fear is that nobody will be able to take care of her children when she’s too old to provide for them and that she hopes someone can help her find a place for them after she dies. I can only tell her we’ll do our best, and that I hope we can raise the money for her new buffalo soon.

Update by Karen Delaney, January 2018

AP’s 2017 Peace Fellow, Jacob Cohn, raised $1,500 to support the family of Mrs. Duong Thi An, so when we arrive at her house she keeps bowing and saying “thank you, thank you”. She gives us the good news that the buffalo AP gave her in the summer, had a calf two months ago.

Mrs. An has been using the buffalo for farming and plowing with the help of her eldest son, Le Quoc Hai (42) and his wife. She uses the fertilizer to grow food in her garden, which feeds her family. She welcomes us into her house and shows us the newly renovated floors

Mrs. An’s three children and 2 grandchildren are affected by Agent Orange. While the oldest son doesn’t have any obvious disability and is able to work the field, he is intellectually disabled and was never able to study. His daughter, Le Thi Dieu Thuy (12) and son Le Quoc Hung (8) have the same symptoms as their father, and cannot concentrate in school. While Dieu receives 1.3 million dong per month as AO compensation, his two children do not because they are third-generation victims. His youngest son is only 2, so it’s too early to tell if he also suffers intellectually.

Her two youngest children – Le Quoc Huong (1979) and Le Thi Hoa(1982) live with her and also receive compensation for AO. Huong, who lost his right eye and is losing his left vision, tells us he gets 800k a month for his disability. The AEPD outreach worker, Mrs. Nguyen Van Thuan, tells him to look into getting more compensation since his eyesight is getting worse. He tells me he takes medication to help with the pain in his eyes, but that doesn’t do anything to help him see better. To get these pills, he has to travel to Hanoi which costs over 1million dong per trip. 

I ask them about surgery to fix his left eye, which is something they mentioned to AP before. They told me that according to the doctors, this surgery has only a 50% success rate. If It doesn’t go right, he goes blind, so the family does not want to take the risk for now. Mrs. An and the son tell us that although he has blurry vision and can only see up to three meters ahead, he can at least still see.  

In spite of his condition, his mom tells us that he is more confident now that he has a job. Huong seemed indeed in good spirit and was excited to tell us about his massage business! He has rented a room next to a hotel about 10 minutes from their house, where he works and sleeps. He cannot get there by himself, so he relies on neighbors to drive him there and back. Right now his business is bringing in about 1 million dong a month in profit, but Huong tells us he has to work a lot. However, he tells us the landlord gave him a great price for renting the room since he is a victim of Agent Orange and has a disability. The price is usually 4 million dong per month, but Huong pays 1.4 million dongs, which allows him to make some profit.

Huong wants to expand his business, buy more equipment and hire staff. For now, he does all the work himself.

The daughter, Le Thi Hoa (36), who has down syndrome, sits with us at the table quietly. When I asked about her, her mom tells me she understands us, talks and recognizes people. She also helps her mom cook and clean and washes clothes. When I asked about other symptoms, Mrs. An explains she just has “normal” illnesses like headaches and, the flu but is otherwise content.  

I then ask Mrs. An what she plans to do with the new buffalo, once it grows. She tells me they will keep the animal for “emergencies”. If Huong eventually decides to do the risky eye surgery, they will sell the animal to cover costs. The procedure would cost over 50 million dong, and since insurance can’t cover it all, they would have to rely on money from the animal.

Apart from getting benefits from the buffalo (rice and fertilizer for her garden), Mrs. An also raises chickens and pigs. Her eldest son, who helps her with farming, lives just next door.  

After thanking us again, Mrs. An shows us the animals at the back of her house. On our way out, we give Huong a ride to his massage center. When we arrive he shows us the facility, which has two large rooms, a kitchen, and a steam room.

I ask Ngoc, AEPD’s translator if our support has helped the son develop his business and she says she hopes so. The income from the buffalo, she tells me, can certainly help him grow his business.

When AEPD met this family, they connected Huong to the district’s “Association of Blind People”, which is where Huong received vocational training on massage. Ngoc tells me it is very common for the blind to be trained in massage to make a living.

Update by Marcela De Campos, September 2018

We visited Ms. An’s family earlier this month and spoke with Huong. Ms. An is in the hospital in Dong Hoi tending to serious problems with her gallbladder and elevated liver enzymes. Huong explained that no one realized Ms. An was sick, so she kept working in the fields and taking care of her children. He recalls that she worked so hard that her skin became yellow and eventually she could not eat anymore. Huong quietly and woefully mutters that they were all so focused on work, not health.

2 kidsMs. An spent 1 month and 10 days in Hue hospital and then was relocated to the provincial Dong Hoi hospital during the week of September 6. The move was the result of policies and procedures that require documentation to maintain her in a bigger city hospital. From Huong’s description, it seems she was unable to get the approval necessary to stay in Hue. She will return home when she is better although they are all unsure of when that will be.

Ms. An has health insurance but it does not cover all the costs of her treatment. The family had to sell the buffalo calf to pay for her treatment in Hue. It helped cover the medical costs no money from the sale remains. On a positive note, Huong is happy to report that the buffalo has just conceived earlier this month and will bear a calf in approximately 10 months. They are maintaining their buffalo-rearing endeavor in the best way they can but are experiencing competing needs that surpass the income generated by it. Her eldest son, Le Quoc Hai, does not suffer from the effects of Agent Orange and is responsible for supporting the family in Ms. An’s temporary absence. Hai spends time with Ms. An in the hospital, uses the buffalo to farm sweet potatoes and vegetables, and raises pigs, ducks, and geese. Huong mentions that they depend on his Hai’s family.

While Hai has taken up the farming and fieldwork duties, his wife has filled in for Ms. An inside the household. Ms. An taught Hoa how to do household chores but she often depends on someone to assist or task her which Hai’s wife is able to do. Beyond these interim household duties, she also goes to Ha Dinh province to purchase medicine for Huong and Hoa every month.

2 kidsHuong provides for his household through his massage parlor. He tells us that things are going well; there are slow days and days with a handful of customers. Huong would like an assistant but isn’t quite ready to hire anyone. Unfortunately, his vision is worsening. He had plans to have a consultation in Hanoi (prior to Ms. An’s treatment) but has since postponed it because there isn’t enough money. Huong will need more surgeries to save his only eye but in the meantime, he can only rely on local medication. Huong did not dwell on the latter for very long he had “work to do–especially now”. We said goodbye to Hoa and Hai’s children (that had been sitting nearby) and Huong hopped in the car. We dropped him off at his massage parlor but not before he gifted us a grapefruit from their garden.

I left the visit feeling saddened by Ms. An’s health condition but inspired by her family’s strength, union, and compassion. The Campaign will continue to support Ms. An’s and Huong’s business plans with regular check-ins by the Outreach Workers and overall guidance.